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Oct 30 2009, 03:24 PM
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#1
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Advanced Member ![]() Group: SUPPORTER Posts: 283 Joined: 11-June 09 From: Southern Chester County Pennsylvania Member No.: 18104 |
Finally got on facebook. Maybe some of you could pm me? Right now I have 3 friends! Can I become a "fan" of dinet? Kari
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Oct 30 2009, 07:47 PM
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#2
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Advanced Member ![]() ![]() ![]() Group: Members Posts: 918 Joined: 20-July 07 From: Washington, D.C. Member No.: 2742 |
Finally got on facebook. Maybe some of you could pm me? Right now I have 3 friends! Can I become a "fan" of dinet? Kari Hey Kayjay! Welcome to the world's biggest time sucker! I do love Facebook, though. I'm more in touch with family and friends than I have been in years! There is a group for POTS, and dysautonomia, but I don't pay much attention to them. This board is much more useful. Send me a PM with your Facebook name, and I'll be your friend! You might regret it, though. I post a lot of goofy observations. I don't think DINET is on Facebook, but I might be wrong. Amy |
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Oct 31 2009, 09:00 AM
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#3
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Advanced Member ![]() Group: Admin Posts: 4837 Joined: 5-September 03 From: Just outside of Philadelphia Member No.: 3 |
DINET is on facebook! We have a group page and Rachel and I moderate the group. Here's a direct link the the DINET facebook group.
You can find a lot of DINET friends by joining the group, then looking through the members. I'll be glad to approve you as a DINET group member--just |
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Oct 31 2009, 11:09 AM
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#4
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Advanced Member ![]() ![]() ![]() Group: Members Posts: 918 Joined: 20-July 07 From: Washington, D.C. Member No.: 2742 |
Hey Nina! I'm glad DINET is on Facebook! I requested membership today.
Amy |
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Oct 31 2009, 12:13 PM
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#5
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Advanced Member ![]() Group: Admin Posts: 4837 Joined: 5-September 03 From: Just outside of Philadelphia Member No.: 3 |
awesome... lmk if you have any problems accessing it. I approved Kari, but Rachel must have gotten to yours before me.
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Nov 1 2009, 03:25 AM
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#6
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Member ![]() ![]() Group: Members Posts: 27 Joined: 29-October 09 Member No.: 18490 |
Cool, I am on facebook and joined the dysautonomia group and am going to join the dinet group. PM me and I will be glad to have people from here as my friends. I also have Trigeminal Neuralgia and have made so many friends who also have this disease---sad we all have to meet this way, but now we have friends along the way. I am middle-aged, play farmville and stay in touch with friends and family. |
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Nov 2 2009, 10:20 PM
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#7
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Advanced Member ![]() ![]() ![]() Group: Members Posts: 73 Joined: 5-October 09 Member No.: 18419 |
Finally got on facebook. Maybe some of you could pm me? Right now I have 3 friends! Can I become a "fan" of dinet? Kari I'm on facebook. I don't have very many friends either. It's hard to have/keep/make, friends when you've been sick for so long. I'll pm you, if you want to be my friend. Why do I feel like a third grader LOL! |
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Nov 3 2009, 12:30 PM
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#8
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Advanced Member ![]() ![]() ![]() Group: Members Posts: 885 Joined: 26-January 04 From: Missouri - 1 1/2 hours from Branson! Member No.: 99 |
Lifesaver - I play Farm Ville too!!
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Nov 3 2009, 01:54 PM
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#9
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Member ![]() ![]() Group: Members Posts: 27 Joined: 29-October 09 Member No.: 18490 |
Hi, I signed up for the DINET group a few days ago. Know you all are busy but was wondering how long it might be before I am added to the facebook group?
Thanks |
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Nov 3 2009, 03:38 PM
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#10
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Advanced Member ![]() Group: SUPPORTER Posts: 283 Joined: 11-June 09 From: Southern Chester County Pennsylvania Member No.: 18104 |
So many of you have great names here. I think I was too foggy to think of a good one when I joined- Now I wish I had a " fun name" .... (IMG:style_emoticons/default/rolleyes.gif)
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Nov 3 2009, 08:14 PM
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#11
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Member ![]() ![]() Group: Members Posts: 27 Joined: 29-October 09 Member No.: 18490 |
I am active on DINET on facebook--missed the activation through the fog. Damn I hate this illness. lifesaver |
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Nov 3 2009, 09:57 PM
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#12
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Advanced Member ![]() ![]() ![]() Group: Members Posts: 1130 Joined: 23-October 03 From: Baltimore, Maryland Member No.: 58 |
Hi,
Whoever is in charge of Facebook membership.....I just "requested membership" by clicking the aforesaid button, but I do NOT want to become a member. I made a mistake. So, To Whom It May Concern , you can ignore my request. Thanks in advance....Futurehope |
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Nov 3 2009, 11:32 PM
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#13
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Advanced Member ![]() Group: Admin Posts: 4837 Joined: 5-September 03 From: Just outside of Philadelphia Member No.: 3 |
You can delete your own membership on facebook at any time. there should be a button or link that allows you to leave the group.
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Nov 3 2009, 11:34 PM
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#14
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Advanced Member ![]() Group: Admin Posts: 4837 Joined: 5-September 03 From: Just outside of Philadelphia Member No.: 3 |
I just looked at how to do it--use your "groups" link from either your bottom bar or side bar pop up on the left of your screen. You'll see a small link at the very top, and it says "my groups"--click that, then you'll see a list of all the groups you've joined. You can chose the "leave group" link at the right side for any group you'd like to quit.
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| Lo-Fi Version | Time is now: 23rd November 2009 - 01:43 AM |