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> Finally Did It - Very Confusing For Me, Facebook
kayjay
post Oct 30 2009, 03:24 PM
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Finally got on facebook. Maybe some of you could pm me? Right now I have 3 friends! Can I become a "fan" of dinet? Kari
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Mrs. Burschman
post Oct 30 2009, 07:47 PM
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QUOTE (kayjay @ Oct 30 2009, 04:24 PM) *
Finally got on facebook. Maybe some of you could pm me? Right now I have 3 friends! Can I become a "fan" of dinet? Kari


Hey Kayjay! Welcome to the world's biggest time sucker! I do love Facebook, though. I'm more in touch with family and friends than I have been in years!

There is a group for POTS, and dysautonomia, but I don't pay much attention to them. This board is much more useful.

Send me a PM with your Facebook name, and I'll be your friend! You might regret it, though. I post a lot of goofy observations.

I don't think DINET is on Facebook, but I might be wrong.

Amy
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MightyMouse
post Oct 31 2009, 09:00 AM
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DINET is on facebook! We have a group page and Rachel and I moderate the group. Here's a direct link the the DINET facebook group.

You can find a lot of DINET friends by joining the group, then looking through the members. I'll be glad to approve you as a DINET group member--just
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Mrs. Burschman
post Oct 31 2009, 11:09 AM
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Hey Nina! I'm glad DINET is on Facebook! I requested membership today.

Amy
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MightyMouse
post Oct 31 2009, 12:13 PM
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awesome... lmk if you have any problems accessing it. I approved Kari, but Rachel must have gotten to yours before me.
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lifesaver
post Nov 1 2009, 03:25 AM
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Cool, I am on facebook and joined the dysautonomia group and am going to join the dinet group. PM me and I will be glad to have people from here as my friends.

I also have Trigeminal Neuralgia and have made so many friends who also have this disease---sad we all have to meet this way, but now we have friends along the way.

I am middle-aged, play farmville and stay in touch with friends and family.
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Notgivinup
post Nov 2 2009, 10:20 PM
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QUOTE (kayjay @ Oct 30 2009, 03:24 PM) *
Finally got on facebook. Maybe some of you could pm me? Right now I have 3 friends! Can I become a "fan" of dinet? Kari


I'm on facebook. I don't have very many friends either. It's hard to have/keep/make, friends when you've been sick for so long. I'll pm you, if you want to be my friend.

Why do I feel like a third grader LOL!
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Dawg Tired
post Nov 3 2009, 12:30 PM
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Lifesaver - I play Farm Ville too!!
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lifesaver
post Nov 3 2009, 01:54 PM
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Hi, I signed up for the DINET group a few days ago. Know you all are busy but was wondering how long it might be before I am added to the facebook group?

Thanks
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kayjay
post Nov 3 2009, 03:38 PM
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So many of you have great names here. I think I was too foggy to think of a good one when I joined- Now I wish I had a " fun name" .... (IMG:style_emoticons/default/rolleyes.gif)
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lifesaver
post Nov 3 2009, 08:14 PM
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I am active on DINET on facebook--missed the activation through the fog. Damn I hate this illness.

lifesaver
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futurehope
post Nov 3 2009, 09:57 PM
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Hi,

Whoever is in charge of Facebook membership.....I just "requested membership" by clicking the aforesaid button, but I do NOT want to become a member. I made a mistake. So, To Whom It May Concern , you can ignore my request.

Thanks in advance....Futurehope
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MightyMouse
post Nov 3 2009, 11:32 PM
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You can delete your own membership on facebook at any time. there should be a button or link that allows you to leave the group.
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MightyMouse
post Nov 3 2009, 11:34 PM
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I just looked at how to do it--use your "groups" link from either your bottom bar or side bar pop up on the left of your screen. You'll see a small link at the very top, and it says "my groups"--click that, then you'll see a list of all the groups you've joined. You can chose the "leave group" link at the right side for any group you'd like to quit.
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