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Sunfish
Advanced Member
29 years old
Female
Toledo, OH
Born Dec-9-1979
Interests
i can't partake in many of them anymore, but they're still my "interests" just the same & are by no means lacking in quantity!: rowing, reading, running(anywhere but a treadmill), swimming, coaching & teaching (swimming), singing (from lively gospel to more traditional to a cappella), cooking & baking, piano(classical to pop to showtunes), musical theater (on stage myself or watching), movies, deep conversation, triathlons, children, deepening & exploring my faith, listening to music (from classical to country to gospel to alternative rock to folk), cello (especially in a string quartet or full orchestra), riding (horses, that is), Bible study, hiking, reading, writing, talking & spending time with friends, learning new things, school (yes, i've always like it), animals, long late-night conversations, time with family, learning about family history, praise & worship, some crafty stuff (esp. knitting, beads/ jewelry making), gardening, using my life experiences to help others, camping, anatomy/physiology (not just b/c of my health), patient support & advocacy, traveling, hands-on volunteer work
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Joined: 12-March 05
Profile Views: 3469*
Last Seen: Today, 05:24 AM
Local Time: Nov 21 2009, 07:54 PM
2405 posts (1.4 per day)
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 muzicmam
 muzicmam
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-------------------- Dx: Progressive Autonomic Neuropathy/ Autonomic Failure, Recurrent Bacteremia/ Sepsis, Chronic MRSA/ J tube site infections, Neurogenic Bladder, Severe Gastroparesis & Intestinal Dysmotility, GERD, Cortisol Deficiency, Allergies, C4-5 Fusion, Sleep Apnea, Anemia, Temperature Dysregulation, Goofy Skin Stuff, possible Mitochondrial Disease
My not-at-all-updated Website (ahhh!) Regular Rx - Mestinon, Zegerid, Clarinex, Carnitor, Domperidone, Zelnorm, Trophic feedings (all via J-tube); TPN (total parenteral nutrition), Saline, Famotodine, & Heparin (all IV); Flonase (nasal spray), Fentanyl (patch), Daytrana (patch), NuvaRing (continuously), B12 (shots), Altabax (cream), Bacitracin (cream), Self-Cathing, BiPAP machine, Gastric Drainage PRN Rx - Imitrex (nasal spray), Zofran ODT, Meclizine HCl, Oxycodone, Tylenol, Motrin, Nystatin (cream), Wheelchair Other "helps"- LOTS of Fluids & Salt (all IV these days), Keepin' Movin (while lying down/ reclined), Port-a-Cath, J Tube, Genie Button (G Tube for drainage), Shower Chair, Massage; God, family & friends, & a bit of stubbornness!! Health is not a condition of my body; it is the power of my soul to cope with the varying condition of my body. ~Jurgen Moltmann~ The great virtue in life is real courage that knows how to face facts & live beyond them. ~D.H. Lawrence~ |
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DancingLight
i'm stalking you again! haha. if someone else reads this they are going to think it's crazy, but you'll know what i mean! :) 28 Mar 2009 - 21:24
Rachel
Thinking of you, Sunfish, and wishing you brighter sunnier days. We miss you. Take care, Rachel 20 Feb 2007 - 19:48 Friends
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14 Nov 2009 - 0:37
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